Gaining weight; update since the NG tube

(This post was supposed to have been posted in August '13)

So its been several months since my last post.  These post are intended to keep track of Trent's progress and also his daily, weekly or monthly activities and milestones, but been quite busy lately and so lapsed several months.

Since the last post, (late April), Trent has been doing remarkably well with his feeding tube.  He's now at 15lbs 3 oz (gaining rougly a couple of grams a day).  But he's still not gaining enough weight as liked.  Nonetheless, he's gaining weight and that is key.

So for the next few months, it will be relatively uneventful.  Most appointments will be GI follow-ups every 2 to 3 weeks.  Trent also has to get blood drawn for monthly monitoring of his liver contents and other stuff.  Speaking of blood draw, he's doing quite well, before he would whine, now he just stares at the phlebotomist (specialist in blood drawing) and smiles while they take his blood.  On the other hand, his twin brother would whine, and literally cry at the top of his lungs when he gets stabbed with the needle.

So far so good.  A few major appointment comes up in November (Hip evaluation) with Orthopedic Surgery

Will update more later